Haven't been posting anything for some time now but decided to give a brief update on my lovely daughter's situation.
She is due to have another MRI scan in about three weeks from now. She has had a second opinion from a London brain surgeon who has confirmed that her tumour of the pineal gland is not suitable for surgery. I'm quite content with that opinion and I think Clare is too. The tumour is deep in the centre of her brain and the risk is far to great for surgery.
The neurologists will keep a careful watch on what is going on via scans. Hopefully these scans will be re-assuring.
Clare's epilepsy is a problem in that the initial drug (Keppra) did not suit her because of the side-effects and she is now on a different drug and seems to be OK-ish with the new medication.
Clare continues to remain very strong and positive. She cannot, of course, drive her car any more - nor can she do any of her wonderful sculptures. She will, we are sure, resume her work one day.
We are so very proud of her. We love her so much.